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Thursday, July 28, 2011

Mahira Mujahida Ani Mufti, Retrognathia and Sleep Apnea Sufferers Need Helping and Donors

from FESBUK BANTEN News on Sunday, June 26, 2011 at 6:12am

PANDEGLANG, FBn, (26 / 6), Mahira Mujahida Animufti --- (9), second son of Mr. Mufti Ali and Mrs. Anita, from childhood suffered Retrognathia (position of the lower jaw bone is too backward) and Sleep Apnea (breathing problems acute during sleep). In fact, when sleeping, her breathe like people who death.

Mufti Ali admitted his son has handled more than 150 trained doctors in Indonesia, including the time taken to RSCM, but no significant, and eventually brought to the National University Hospital (NUH) in Singapore.




Our second child, Mahira Mujahida (b. 2002), has grown less normal when he turned 2 yrs. We took it to the nearest doctor. After getting treatment more than 6 months. Growth is still not normal. At the age of 5, we try to bring it to Prof. Hembing in Tanah Abang-Jakarta. There Mahira get herbal treatments and acupuncture therapy twice a week and lasted 14 months (April 2006 - December 2007). Because there is no development, on 19 January 2008 we decided to take him to the RSCM. After passing a series of medical diagnosis that took place since 19 January 2008-7 October 2010, Mahira declared disease micrognathia, or lower jaw bone is too small to interfere with breathing (sleep apnea). Since the birth of our children otherwise had no rest (sleep). To cope with this disease, in July 2010 RSCM decided that Mahira have surgery. For this operation, the jaw Mahira should be installed a device called a osteodistraction that cost Rp 200,000,000 Unfortunately this tool does not exist in the RSCM and in hospitals anywhere in Indonesia.

Our disease son is the second disease, which is handled by the RSCM. The first case successfully resolved because when it (2005) RSCM in cooperation with the Government of Japan that helps bring medical equipment and experts. When our son declared impaired micrognathia and sleep apnea, cooperation between RSCM and the Government of Japan is not there anymore. Finally after 7 months without treatment and medical care, on the recommendation of dr. Abdul Latif in March 2011 we tried to consult a specialist doctor at the National University Hospital (NUH), Prof. Loh Hong Sai about our child's illness. On April 14, 2011 we were asked to come to the dental center 3, National University Hospital of Singapore. After passing a series of diagnosis that lasted from 14 April to 2 June 2011 in NUH, our son called otherwise impaired by retrognathia, position the lower jaw bone is too backward. The condition is thought to cause acute respiratory disorders (sleep apnea) in our children, especially when sleeping. On June 2, 2011, a konsulent most senior in the hospital, Prof.. Dr. Djeng Shieh Kien decided that Mahira have surgery to advance the lower jaw bone. This operation is planned to be held on November 29, 2011 in NUH Singapore. Cost required for this operation of S $ 44,113 or approximately Rp 308,791,000 (three hundred eight million seven hundred and Ninety-one thousand rupiah) with the assumption of 1 S $ = Rp 7,000. Post-operation medical control Mahira should get every week at NUH. In order for the process of his recovery goes well, then we decided to stay for 6 months in Singapore.

The details need Mahira Mujahida medical expenses are as follows:

Operating cost: S $ 29,113
Cost of 24 x control postoperative: 24 x S $ 125 = S $ 3,000
Flat rental fee for 6 months: 6 x S $ 2,000 = S $ 12,000
Total: S $ 44,113 (USD 308 791 000)


Operating costs and accommodation mentioned above is not able to handle and tackle our own because we were just ordinary civil servants (gol. III / C) at IAIN Sultan Maulana Hasanuddin Banten Serang. While the savings we have left from the sale of land and the vehicle has run out we use for medical expenses Mahira for 5 years in Indonesia (2006-2010) and for the treatment of early stages in Singapore (14 April to 2 June 2011). Askes, the only health insurance we have, not to cover medical expenses abroad.

If you are pleased to assist the following account number: 0062-01-041129-500 (BRI Cab. Pandeglang), a / n Mufti Ali.

Regards,

Mufti Ali
muftiani@yahoo.com

HP: +6285814119100

Mahira when cared for in Singapore.

Mahira condition when asleep.

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